Deposit H7 - Haemophilia Foundation of Australia deposit

Identity area

Reference code

H7

Title

Haemophilia Foundation of Australia deposit

Date(s)

  • 1977 - 1993 (Creation)

Level of description

Deposit

Extent and medium

9.9 m

Context area

Name of creator

(1979 -)

Biographical history

The Australian Federation of Haemophilia Societies was formed in 1979 by state associations in Victoria, New South Wales and South Australia and was incorporated in 1986. Societies and support groups also formed in Queensland, Western Australia, Tasmania, Hunter Valley, Australian Capital Territory and Northern Territory and became part of the federation which changed its name to the Haemophilia Foundation of Australia. The Foundation represents people with haemophilia, von Willebrand disorder and other related inherited bleeding disorders, through advocacy, education and research. Its early work was directed towards lobbying for improved treatment facilities, blood product supplies and counselling services. From the mid 1980s it campaigned for access to safer supplies of blood products which had became contaminated by the Human Immunodeficiency Virus and hepatitis C, and it extended its role to ensuring that treatment and support for people with haemophilia infected as a result was available. The Foundation adopted the name Haemophilia Foundation Australia from 1993 with the adoption of a new logo.

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Scope and content

Council and Executive minutes, reports, conference papers, correspondence with members and other AIDS-related bodies, research files, press cuttings, audiovisual material and printed material. Includes records of the Haemophilia Society of Victoria, a predecessor and then member of the federation (1977-1991).

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Archives staff will need to request permission from the owner of the records before access can be given

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Dates of creation revision deletion

Entered from deposit description 22 November 2012

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